Scientific updates
Adverse event reporting information can be found at the bottom of this page.
Click HERE for prescribing information.
This page is intended to keep you up to date on current topics in Duchenne muscular dystrophy (DMD), including insights from UK neuromuscular events and international conferences, journal articles, and news.
Neuromuscular events
Stay updated on UK neuromuscular events and international DMD conferences, including Italfarmaco’s congress symposia, abstracts, posters, as well as oral presentations.
Journal articles
Stay up-to-date with the latest
Italfarmaco-sponsored publications, as well as DMD patient care guidelines.
DMD news
Read the latest DMD news, including
updates on research and patient care.
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30 mins
Dr Horrrocks (UK)
Dr Childs (UK) Prof Guglieri (UK)
Introducing Duvyzat® (givinostat) in DMD
Explore givinostat’s HDAC action, clinical benefits, practical use, and the evolving needs of UK DMD services.
50 mins
Prof. Muntoni (UK)
Prof. Guglieri (UK) Prof. Servais (UK)
DMD: Where we are now and perspectives on where we go next
Current and emerging care guidelines, and perspectives on future treatment in Duchenne muscular dystrophy.
18 mins
Prof. Mercuri (Italy)
Assessing milestones & disease progression in DMD
Importance and challenges of assessing DMD progression in clinical trials and clinical practice.
12 mins
Prof. A Aartsma-Rus (Netherlands)
The role of HDAC inhibition as therapeutical target in DMD
DMD pathophysiology overview, role of HDACs, HDAC inhibition as a potential therapeutic target.
16 mins
Dr. Blaschek (Germany)
Evolution of clinical outcomes assessment in DMD: Integrating innovative endpoints into clinical practice
DMD clinical assessment vs natural history, the predictive value of timed tests.
19 mins
Prof. Phan (USA)
New approaches in DMD with a focus on clinical endpoints
Clinical endpoints in DMD Trials, MRS of vastus lateralis as a valuable objective endpoint.
Neuromuscular events calendar
2025
January
February
March
MDUK Oxford Neuromuscular Centre 2025 Annual Meeting: 26 March 2025, Oxford
Duchenne UK New Horizons Conference: 28 –29 March 2025, London
April
July
September
World Duchenne Awareness Day: 7 September 2025
British Myology Society Annual Meeting: 8 – 9 September 2025, Oxford
October
November
Action Duchenne International Conference, 14th – 15th November, Hinckley
Adverse events should be reported. Reporting forms and information can be found at https://yellowcard.mhra.gov.uk/ or search for MHRA Yellow Card in the Google Play or Apple App Store.
Adverse events should also be reported to ITF Pharma Ltd Medical Information on: 0800 098 4040 or UK.Medical.Information@italfarmacogroup.com
Product Quality Complaints should also be reported to ITF Pharma Ltd Medical Information on: 0800 098 4040 or UK.Medical.Information@italfarmacogroup.com
